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We could all use some help and support at times. How and when we choose to find that support is personal - particularly when it involves our children. There are many government based, non-profit, and for-profit organizations and businesses available and ready to provide support to parents and thier children with special needs, myself included. Research your resources & options, and create a support system that suits you. Always remember YOU are in charge. Your support team should fit your and your child's needs, your resource availability, and your current knowledge base. As a start, I am listing some resources below. Just click on the logo of anything you are interested in, and it will take you to their website!
Blog page authored by Leah Sansone, M.Ed. with the goal to communicate information and ideas pertaining to special education and 504 situations.
Topics range from informational, or procedurally based descriptives, to experiential stories, to support in advocating and tips or advice for effectively working within an IEP or 504 team.
The entries represent Leah's experience and learnings spanning a career of over a decade in special education teaching, administration, and advocacy.
We provide special education and related services according to the federal mandates of the Individual with Disabilities Act and the regulations of the North Carolina Public School Law, Article 9.
The Children’s Law Clinic provides free legal advice, advocacy, and legal representation to low-income, at-risk children in cases involving special education, school discipline, and children’s disability benefits.
We believe people who experience a disability deserve equal opportunities and are the best experts at determining what’s best for them. We are driven by the vision to see individuals in North Carolina who experience a disability living in the communities of their choice and empowered to address their own needs. Our mission is to serve North Carolinians who experience a disability through empowering, advocating and advancing consumer-led and consumer-driven initiatives.
The National Federation works to develop and implement policies, legislation, funding mechanisms, and service systems that utilize the strengths of families. Its emphasis on advocacy offers families a voice in the formation of national policy, services and supports for their children with mental health needs and substance use challenges across the lifespan.
Here at NC Families United, we see the value in everyone. We want to be a catalyst for positive change, and since our beginnings in 2000, we’ve been driven by the same ideas we initially founded our Non-Profit Organization upon: support, empowerment, and progress. Learn more about our mission, our vision, and how we go about making the changes we want to see.
ONLINE COLLEGE GUIDE FOR DEAF AND HARD-OF-HEARING STUDENTS
We’re helping students in their pre-college journey by ranking colleges and programs across the country using aggregated publicly available data. And, we’re doing it without any advertising or affiliate relationships with schools. This ensures zero bias of our results.
This Online Guide for Deaf and hard of Hearing Students, helps young adults do their research and seek out schools that fully accommodate their needs.
It goes over challenges and accommodations in more detail, and also reviews the top colleges and scholarships available for deaf and hard-of-hearing students. Finally, it provides additional resources that may be helpful.
Providing support to families with children who have special needs and the service providers who work with them since 1985.rolina children with Special Needs.
NCDHHS offers many support networks, helplines, groups, centers, divisions, etc. for individuals
with special needs.
The following websites provide information about resources for North Carolina children with Special Needs.
The North Carolina Children and Youth with Special Health Care Needs Help Line is a free information and referral source for caregivers of and professionals who work with children and youth who have or are at risk for chronic physical, developmental, behavioral or emotional conditions, needing health services beyond the care that a child typically needs.
Birth Injury Center was founded in 2021 by a group of people with an in-depth understanding of birth injuries. Our team includes birth-injury lawyers, healthcare providers who are well-practiced in birth injuries and prenatal complications, and family members of people with cerebral palsy and autism. Our primary goal is to educate the public and help them identify if their family has fallen victim to negligence by an institution, and to create and distribute educational content and provide access to legal representation for these highly sensitive situations. Our website offers an in-depth knowledge base and connections to reputable resources across the United State
We work with ALL people with disabilities, helping them seek solutions that work for them. We respect that people with disabilities know their own needs, and their perspective is the most important as they decide how they want to live, work, and take part in their communities. That is why people with disabilities make up a majority of our board and staff, and our consumers are in charge of every phase of their interaction with us.
Part of a nationwide system of protection and advocacy agencies. DRNC helps people across NC gain access to disability services and opportunities through its advocacy and legal expertise.
The mission of the Office of Exceptional Children is to ensure that students with disabilities develop intellectually, physically, emotionally, and vocationally through the provision of an appropriate individualized education program in the least restrictive environment.
We help North Carolina pay for education. We are the State agency that promotes access to education by administering financial aid and savings programs, informing students and families about paying for education, teaching educators about financial aid administration, and advocating for resources to support students.
The North Carolina Early Intervention Branch (NCEI) is a part of the N.C. Division of Public Health. It is the lead agency for the N.C. Infant-Toddler Program (ITP). The Infant-Toddler Program provides supports and services for families and their children, birth to three who have special needs. Research shows that this time period is critical. It offers a window of opportunity to make a positive difference in how a child develops and learns. Sixteen Children's Developmental Services Agencies (CDSAs) across North Carolina work with local service providers to help families help their children succeed.
All the materials found on the CPIR Hub have been created and archived for Parent Centers around the country to help them provide support and services to the families they serve. The CPIR employs a user-centered process, gathering the perspectives of our experienced audience—Parent Center staff members and other experts—every step of the way, to create products and services that increase Parent Centers’ knowledge and capacity in specific domains.
MISSION STATEMENT:
To empower, connect, and support the lifespan of individuals with Down syndrome, their families, and the community through outreach, advocacy, and education in North Carolina.
VISION:
North Carolina Down Syndrome Alliance is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.
The Autism Society of North Carolina improves the lives of individuals with autism, supports their families, and educates communities. Our vision is to be the trusted partner for all people with autism as they lead fulfilling lives. We respect and value the uniqueness of all individuals with autism; when provided the opportunity, each person can make a unique contribution to their family, community, and society.
Since 1998, millions of parents and adults have trusted ADDitude's expert guidance and support for living better with ADHD and its related mental health conditions. Our mission is to be your trusted advisor, an unwavering source of understanding and guidance along the path to wellness.
The Decoding Dyslexia movement began in 2011 when twelve New Jersey parents took the same train ride home from a learning disabilities luncheon in New York City and discovered they all had the same story of struggles to get services for their children in the public school system. They formed a grassroots movement called Decoding Dyslexia New Jersey and the mission was to raise dyslexia awareness in their state, to provide resources to families, and to implement policy change. The had success and created a guide for other states to form their own chapter.
The mission of the Family Support Program is to promote and provide support for families with children who have special needs.
We believe in improving the lives of people affected by ADHD. In working towards our mission, the behavior of the CHADD staff and volunteer leadership is determined by the following core values: Integrity Respectful, open communication. Quality of our work product and productivity in our work effort, to assure sustained customer satisfaction. Flexibility and teamwork. A demonstrated commitment to diversity in all its forms. Dedicated to fulfilling CHADD’s mission with passion and enthusiasm.
Specialized Recreation Services offers many community-based recreational programs, designed specifically to meet the needs of individuals of all ages with developmental and/or physical disabilities. Specialized Recreation Services provides lower staff-to-participant ratios and experienced staff, to best provide a variety of recreational opportunities for individuals to improve their leisure skills and gain new experiences.
The programs within our Children and Family Services provide support to families with children. These services help first-time moms prepare for birth, provides nurse home visits, and additional support through a child’s first five years. We offer continued support to school-age children and their families'.experiences. This includes information and referral for those living with, caring for, and concerned about a child with special health care needs.
A website that puts resources at your finger tips. Select your county, and get a listing of helpful resources in your area. Also home to NC's Parent Training and Information Center and provide a variety of free services to parents of children with disabilities including: individual assistance with education issues, workshops, lending library, newsletters, statewide toll-free Parent Info Line and more.
Legal Aid of North Carolina (LANC) is a statewide, nonprofit law firm that provides free legal services in civil matters to low-income people to ensure equal access to justice and to remove barriers to economic opportunity. Education is a priority legal area for LANC attorneys, who represent students and parents in all 100 counties in North Carolina. LANC attorneys also assist families with legal problems affecting basic human needs, such as family, health, housing, employment, and income.
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